Module 3: Epidemiology of HIV/AIDS among Native Communities

Goal of Module 3:
To help you identify how and why HIV/AIDS spreads in your Native community in order to strengthen your intervention.

Epidemiology is the study of the ways in which a disease progresses through a population. In order to plan and carry out an effective intervention, you must understand how and why people in your community become infected with and spread HIV.

In this module, you will find:

  • an article on epidemiology as it relates to American Indians, Alaska Natives, and Native Hawaiians
  • Fast Facts that offer useful statistics and information
  • Fact Sheets that offer statistics for specific Native populations
  • resources for further research on the epidemiology of HIV/AIDS
  • exercises that provide steps toward learning about epidemiology in your community

 

Contents 1b Why Is Epidemiology Important to Your Community?
1.

Epidemiology of HIV/AIDS among AI/AN/NHs:



2. Fast Facts about the Epidemiology of HIV/AIDS for AI/AN/NHs:
3. Fact Sheets
 

HIV/AIDS among AI/ANs in Alaska

 

HIV/AIDS among AI/ANs in Arizona

 

HIV/AIDS among Native Americans in California

 

HIV/AIDS among Native Americans in Minnesota

 

HIV/AIDS among AI/ANs in New Mexico

 

HIV/AIDS among Native Americans in New York

 

HIV/AIDS among Native Americans in North Carolina

 

HIV/AIDS among AI/ANs in Oklahoma

 

HIV/AIDS among Native Americans in Washington

4. Finding Data
4a. Resources
4b. Module 3 Exercises

Statistics tell a story about the current health status of your community. You can use this type of epidemiological data to make a general statement about the impact of the HIV/AIDS epidemic on the national Native population. Try to learn about the health conditions of your community from as many resources as possible. State and local health departments, as well as larger tribes and the Indian Health Service, collect health-related information about Native communities. You can contact these departments and services to gather information about your specific community. There is often an epidemiologist at the local or state level who can assist you in compiling and interpreting data reports. You can also contact NNAAPC to apply for Capacity Building Assistance.

If you are part of a clinic or community-based organization serving Native populations, you can analyze internal information from your agency’s databases. This existing data can help you to determine trends and issues specific to your organization. Review the number of Native clients served by your clinic or organization, common problems and services documented by your agency, referrals made to other agencies, and so on. Local data is the most persuasive and relevant in creating a Community Services Assessment, but if none exists, look to state and then national statistics and demographics about Native populations. (For more information, see Module 5: Conducting a Community Services Assessment.) Be sure that you follow your clinic or agency’s client confidentiality standards and/or Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule regulations.

Gathering and Interpreting Data

Gathering quantitative data involves the collection of numbers that can then be translated and quantified (as in a mean/average, rate, or ratio).  In this module we select one primary quantifiable measure: rates. For more information on these and other ways to collect data in your community, see Module 6: Evaluation.

TYPES OF DATA:
Qualitative data is information that is difficult to measure, count, or express in numerical terms. Gathering qualitative data may involve observation, interviewing, and document review. Qualitative data is often presented in textual or narrative form and is rich in detail and description.

Quantitative data is information expressed in numerical format. Quantitative methods seek facts or causes of phenomena that can be expressed numerically and analyzed statistically. To gather quantitative data, one might conduct surveys, closed-ended interviews, and tests. Epidemiological statistics fall into this category of information seeking.

Many Native people believe in a holistic approach to health. According to this view, health equates to the harmony of body and soul with nature. Illness implies an imbalance within the individual and between the individual and the universe. Native American patients who access traditional medicine and ceremonies report physical relief as well as an overall increase in their sense of well-being. This type of data might be difficult to track by gathering only quantitative data. To document cultural strengths and values, always keep a holistic viewpoint in mind when gathering health and wellness information about Native people in your community. This will help you to gather information to develop a prevention program rooted in Native values.